Interstitial Lung Disease (Ild)

Interstitial lung disease (ILD) is a group of conditions that cause inflammation and scarring (fibrosis) of the lungs. This scarring makes the lungs stiff and causes difficulty breathing. As the lung damage is often permanent, treatment mainly focuses on slowing disease progression.

What is interstitial lung disease?

Interstitial lung disease (ILD) is an umbrella term used for a group of more than 200 disorders that affect lung tissue. These disorders cause inflammation and scarring (fibrosis) of the lungs. Over time, this scarring makes the lungs stiff, causing breathing difficulties and reduced lung function. In many cases, the effects of ILD cannot be reversed, but treatment can help slow its progression and improve quality of life.

At Welbeck, our respiratory consultants see patients with ILD in our state-of-the-art Lung Health centre. They have access to the most advanced diagnostics and treatment options to ensure you receive the best possible care.

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ILD symptoms often develop slowly and may be mistaken for other lung or heart conditions. As the disease progresses, symptoms usually worsen.

Common symptoms include:

  • shortness of breath, especially when active

  • a dry, persistent cough

  • fatigue or tiredness

  • chest discomfort or tightness

  • unintended weight loss

  • clubbing (widening) of the fingertips

It’s not always clear what causes ILD, and in many cases, no clear cause is identified. There are certain factors that are known to increase the risk of developing ILD.  

Possible causes and risk factors include:

  • long-term exposure to dusts such as silica, asbestos, or metal particles

  • smoking

  • certain medications, including chemotherapy and some heart or antibiotic drugs

  • radiotherapy to the chest

  • autoimmune diseases such as rheumatoid arthritis, lupus, or scleroderma

  • genetic factors

  • repeated respiratory infections

If you suspect you have interstitial lung disease (ILD), you’ll meet with one of our expert respiratory consultants at our Lung Health centre. During your appointment, your consultant will ask you about your symptoms, overall health, and medical history, then perform a physical examination. They may arrange further tests to better understand your lung health and guide the next steps in your care.

Possible tests include: 

  • a CT scan to assess lung scarring and patterns

  • lung function tests to measure breathing capacity

  • blood tests to check for autoimmune or inflammatory causes

  • a bronchoscopy 

  • a lung biopsy if the diagnosis remains unclear

At Welbeck, our team of respiratory specialists and radiologists work together using advanced imaging and minimally invasive procedures for fast and accurate diagnosis. Once any further tests are complete, your consultant will explain your diagnosis as soon as possible.

Preventing interstitial lung disease (ILD) isn’t always straightforward, because many cases have no known cause. However, there are steps that can reduce your risk and maintain good lung health. 

Reduce your risk of ILD by: 

  • limiting exposure to dust, fumes, asbestos, silica, coal dust, or other occupational/environmental irritants.

  • stopping smoking

  • managing underlying autoimmune diseases (like rheumatoid arthritis or scleroderma) that can lead to ILD

  • preventing lung infections (like flu and pneumonia) with vaccination, to reduce stress on the lungs

It’s important to get regular check-ups if you’re at risk of ILD, as early detection can help slow progression.

If untreated, ILD can lead to long-term complications that affect lung function and overall health.

These include:

  • pulmonary hypertension – high blood pressure in the arteries of the lungs

  • respiratory failure – when the lungs cannot provide enough oxygen

  • right-sided heart strain (cor pulmonale) due to chronic low oxygen

  • increased risk of lung infections

  • reduced quality of life due to breathlessness and fatigue

Early diagnosis and treatment can help reduce the risk of these complications.

The treatment you receive for ILD will depend on the severity of your condition. In many cases, the scarring and damage to your lungs is irreversible, so your tailored treatment plan will focus on slowing the progression of your condition and managing the symptoms you’re experiencing to improve your quality of life. 

Treatment options include:

  • anti-fibrotic medicines to slow scarring 

  • corticosteroids or immunosuppressant drugs to reduce inflammation

  • oxygen therapy to ease breathing and improve energy levels

  • pulmonary rehabilitation – a supervised exercise and education programme to improve lung function and stamina

  • a lung transplant in advanced cases when other treatments are no longer effective

Your team will also support you with lifestyle changes such as stopping smoking and staying active, as these can make a big difference to symptoms.

At Welbeck, our respiratory consultants are experts in their field and are dedicated to providing world-class care to every patient.

With access to colleagues across other specialties, our consultants are also able to refer within the Welbeck ecosystem if required to ensure you receive the treatment you need as quickly as possible, all under one roof.  

All appointments, testing, treatment, and follow-up appointments take place within our state-of-the-art facilities, enabling us to deliver accurate diagnostics and advanced treatments.

Your health is important to us, so we strive to offer same-day appointments whenever possible.

Our consultants are recognised by the major health insurance companies. If you have private health insurance, your treatment at Welbeck can begin once you have obtained authorisation. We also provide care to self-paying patients. Learn more about the different payment options at Welbeck.

Get in touch today to book an appointment.

Our locations

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London

1 Welbeck Street
Marylebone
London
W1G 0AR

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Frequently asked questions

Living with ILD can be challenging, but there are things you can do to help manage your lung health and symptoms, such as:

  • quitting smoking and avoiding secondhand smoke

  • keeping up to date with vaccinations

  • eating a healthy, balanced diet

  • maintaining gentle physical activity to strengthen muscles

  • using oxygen as prescribed

  • joining a pulmonary rehabilitation or support group

  • attending regular follow-up appointments so your team can adjust treatment as needed

Pulmonary fibrosis is a type of ILD where lung scarring is the main feature, but ILD includes many other conditions, all with different causes.

There’s currently no cure for ILD, but our specialists at Welbeck can put together a tailored treatment plan for you to help slow progression, relieve symptoms, and improve your quality of life.

ILD can affect life expectancy, but this varies widely depending on the type and severity of the condition. Some forms tend to progress more quickly and can shorten lifespan, while others may remain fairly stable. Early diagnosis, followed by a tailored treatment plan including lifestyle changes, can help slow disease progression and improve quality of life. Advances in therapies now allow many people with ILD to live longer, more active lives than previously possible.

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